Advance Rare Disease Medical Research
Sedaghatian type Spondylometaphyseal Dysplasia (SSMD) is an ultra-rare genetic condition. It does not have an approved treatment today. The ultimate cure for this condition is through Gene therapy and it costs $5-7 million. Care & Share supports research efforts to find a cure for this condition. This research will benefit several kids affected with this condition including Raghav. More details at curegpx4.org
The condition is very rare and patients suffer poor quality of life. Not a lot is known about the disease. We are working with researches to ask the right questions before getting to answers.
Hear Raghav’s parents talk about their efforts to find a cure for SSMD.
Donate Now
“Raghav’s future is described as wheel chair bound, non-verbal and prone to pre-mature death. We want your help to change that!”
Your donations will directly go towards medical research that will cure Raghav and other kids affected with this condition.
Care & Share is a registered 501c(3) non-profit (EIN: 36-3708966). Donations are tax deductible.